I have witnessed different ways people (husbands, mothers, friends, clients) handle the bad news that they have a terminal illness. Their responses varied significantly and made a noticeable difference in how this news affected the lives of those close to them. None of us can genuinely predict ahead of time how we might respond in a situation. We can speculate. We can prepare – or not. I’d advocate for spending some time thinking about the possibility. Overcoming the taboos associated with discussing death is worthwhile.
Research shows that people who have contemplated their death and set out their preferences in writing do better (psychologically and financially) in the last year of their life. Of course, these positive consequences also ameliorate the emotional pain and suffering being experienced by those close to them. I was 37 years old when my husband, Joe, told me his bad news. He had received a diagnosis that he had the cancer, multiple myeloma. The average life expectancy at that time for this diagnosis, more than three decades ago, was two years. As things turned out, he lived three and a half years.
My husband’s first response to his bad news was to protect his privacy. He was a politician and did not want the information about his condition to be publicly known. He was engaged in the settlement negotiation for our new democratic South Africa and future focused.
His complete future focus included stopping his sessions with his biographer. He curtailed investing precious time and energy in looking back and reflecting on events from years gone by.
My younger self was supportive, unchallenging, and unquestioning. Joe was the central character, the person dying, with the right to choose how to shape his remaining time. My approach had consequences. It meant that we arrived at the final week of his life only to discover that he was about to die intestate!
Years later, I read Chasing Daylight. It was written in 2005 by fifty-three-year-old Eugene O’Kelly, CEO of KPMG, a prominent American firm. He responded so differently from what I had experienced with my husband. He begins his book with, “I was blessed. I was told I had three months to live.” He stopped work immediately.
A snapshot of a page from Eugene O Kelly’s Chasing Daylight. (Photo: Supplied, Helena Dolny)
Eugene O Kellys’s Chasing Daylight. (Photo: Supplied, Helena Dolny)
His brain cancer diagnosis forced him to think, “With whom did he want to spend his remaining time, doing what? He cried. He prayed. He sat in church. His elder daughter flew to New York to join their blended family. He tried three days of chemo and then quit when he assessed how awful the side effects made him feel. Released from any medical appointments, he was truly free to design his time.
Always a high achiever, he, in his own words, “was motivated to succeed at death – that is, to try to be constructive about it.” He made a list: finance, relationships, simplify, live in the moment, transition to next state, plan funeral.
What stayed with me most from reading O’Kelly’s memoir was the time and attention he chose to give to “unwinding relationships.” He drew a series of concentric circles. The innermost circle was his wife and children, followed by immediate family members and lifetime friends. The fourth circle was close business associates. The fifth, most outer circle was people who had enhanced his life, people with whom he had shared a passion or experience.
He started with the outer circle. It is a fascinating choice and beautifully described as well as stressful. He acknowledges that he miscalculated the time required – he spent three weeks on the fifth circle. His health is deteriorating as he works his way inwards towards his most beloved.
Years later, I published my book Before Forever After. I had also retrained and was working as an executive and leadership coach. A person contacted me and requested a rapport session to discuss her needs and to ascertain if we might be a good fit to work together.
Her predicament was recurring breast cancer and a limited but indeterminate timeline. Her question was, “How am I best going to live my remaining time?” which turned out to be three years. I learned a lot from our sessions. It was such a co-creative engagement. I would even venture to say we had fun.
How do we share this learning? What if I, or you, the reader, were to get bad news about ourselves or a nearest and dearest? How might we set about designing how we would choose to live that final chapter of our lives? How might those choices best support both ourselves and those we love?
The death rate is a hundred per cent – only the expiry date is not specified. However, when people get bad news about a terminal prognosis, there have always been those who have responded exceptionally well to treatment and been afforded “extra time”, so to speak.
I am going to imagine that it is me who has received the bad news. Over the next months, I am going to share what I hope I would have the energy, presence of mind and emotional resilience to put in place as my way forward.
I will write from the perspective of acceptance, and then, of course, if the universe were to favour me with “extra time,” I’d graciously accept this as a bonus! I do not think I’ll be jinxed by embracing this in-depth approach. I hope to influence more people to let go of the taboo about talking about dying. Our world and our relationships will benefit if we can normalise these conversations.